I took these pages of notes while listening to a podcast on chronic illness. Putting pen to paper helps me to listen more intentionally, and leaves me with some documentation of the things I learned that I can refer back to later. Diagrams and lists and arrows and different styles of lettering are all good visual cues for my memory.
The podcast is called The One You Feed, and this episode was a conversation with the author Meghan O’Rourke about the challenges of chronic illness. In my quest to learn more about migraine, sometimes related topics like chronic illness are also helpful. Meghan spoke about the benefits and also the challenges of having a diagnosis, about patient-driven advocacy, and mostly about living with invisible illness in general. All of her comments were so relatable. Her level of empathy is incredible.
This episode is worth a listen if you or someone you love is living with a chronic and/or invisible illness.
References
- The One You Feed podcast
- The Challenges of Chronic Illness episode
- Meghan O’Rourke, author
- The Invisible Kingdom: Reimagining Chronic Illness, book
From the opening page of the book:
Illness is the night-side of life, a more onerous citizenship. Everyone who is born holds dual citizenship, in the kingdom of the well and in the kingdom of the sick. Although we all prefer to use only the good passport, sooner or later each of us is obliged, at least for a spell, to identify ourselves as citizens of that other place.
Susan Sonntag, Illness as a Metaphor
Stationery in the Photo
- migraine notebook, A5 dot-grid in the “Army” colourway
- skeleton clip
- pen
- Tombow dual brush pens (098 and N79)
P.S. Make the time to take good care of yourself. xx
